The Nia-Tesa Blackett Foundation - (44)1376510051

The Nia-Tesa Blackett Foundation is a medical research based organization which targets cutting-edge research work into rare brain tumours primarily gandliogliomas. The Foundation also targets research into hydrocephalus and shunt-management...

Out of Tragedy springs Hope…

The Nia-Tesa Blackett Foundation is named in memory of our precious "angel" and daughter NIA* who tragically passed away after developing a GANGLIOGLIOMA, a rare brain tumor.

Out of those tragic circumstances, we bring hope to others.Our efforts are now firmly focused on the future and in honoring NIA's memory. Our vision is that robust research into these rare brain tumors and cutting edge medical practice will achieve breakthroughs in both clinical and complimentary medicine to allow practitioners to move beyond the current conventional methodologies governing the medical treatment of these conditions.

As NIA's parents, we are the founding trustees of this charitable Foundation and we will serve in the roles of Chairman/ Executive Director and President/ Director of Programs; maintaining a hands on role in the future direction of the Trust. We bring to the table our own unique experiences, which we are willing to share, in the hope that others will benefit from the knowledge we have gained first-hand.

Through stimulating discussion, influencing policy and developing medical practice at government, private and 3rd sector levels, the Foundation aims to address gaps in early diagnosis, treatment and information flow surrounding this disease. Our target audiences include academia, the medical professionals, institutional donors and others who are experiencing or have experienced this on a personal as well as on a family level.

Through targeting academia, we hope to influence the new generation of medical practitioners, as well as challenging the orthodox mindset of our current medical professionals to new and exciting clinical practices.

The foundation will operate as an international private charitable foundation based in the United Kingdom with offices in the USA, Canada & Barbados. We will seek out links with other similar foundations and organizations internationally through MOU's.

We believe strongly that social debate will bring about a change in the attitude of most people and ultimately the policy makers will need to look at how environmental factors as well as unbridled inorganic technology may be a contributing source to ill-health.

Clinical programs will initially be sponsored in the UK and Barbados. However, international expansion will be created over time as local partners and stakeholders are found who will run the "vision" of NTBF.

No family should have to lose a child or a loved one prematurely due to any shortfall. We must become the "change" we want to see in our troubled world!

Support is something that all of us do need at times and for those kids who are facing life threatening tumors that can take a lot of precious quality life away from them. The clock is ticking away and a cure is still waiting out there to be found by a team of dedicated researchers who will never give up the fight or lose hope for these desperately ill youngsters with rare forms of brain tumors. The children need continued support and this support is something that can begin with you and grow into something that can be bigger than the sum of us all. Caring is sharing and sharing is caring. Make a promise to lend your support to boys and girls who need hope more than they need anything else.
True hope comes from faith and faith comes from a team of dedicated volunteers who will lend their assistance by giving their heart, their time, whatever it takes to spread a little happiness that these ill children do need more than anything. What are some ways through which funds can be raised for these special children? Well, support not only comes in many shapes and sizes, it also comes available in an array of many ideas, some of which are creative and others inspirational. Nonetheless, the one binding tie is that they raise funds, and this funding is the support we need to continue research and to help each sick child who has a rare form of brain tumor that he or she has to face each day when they wake up.


Some of these fund-raising events for charity can include the following:
1) Charity walks and Marathons
2) Charity Car Washes
3) Charity In-Store Boxes
4) Charity Raffles
5) Charity Auctions
6) Meet A Celebrity - For children who are affected by Brain Tumor.
7) Drink A Glass of Lemonade - To help aid brain-tumor kids.
8) Charity Bake Sale for Tumor-Free Children

These are just some of the ways we can all help. Commit to a monthly pledge for giving not only of your money but of your time to make the world a better place for those who have been robbed of good health.